Table 1 Patient and parent characteristics
From: Feasibility of implementing systematic social needs assessment for children with medical complexity
Variable | Overall |
|---|---|
N | 49 |
Patient demographic characteristics | |
 Patient age (years), mean (SD) | 8.6 (5.8) |
 Patient race/ethnicity | |
  Black | 13 (26.5%) |
  Hispanic | 20 (40.8%) |
  White | 14 (28.6%) |
  Multiracial or other | 2 (4.1%) |
 Patient gender | |
  Male | 32 (65.3%) |
  Female | 17 (34.7%) |
 Public health insurance (Medicaid or Medicare) | 39 (79.6%) |
Patient clinical characteristics | |
 Specialists | |
  Number of specialists seen in past 12 months, mean (SD) | 6.9 (2) |
  Neurology | 39 (79.6%) |
  Orthopedics | 28 (57.1%) |
  Pulmonary | 28 (57.1%) |
  Gastrointestinal | 34 (69.4%) |
  Otolaryngology | 27 (55.1%) |
  Pediatric general surgery | 24 (49%) |
  Ophthalmology | 21 (42.9%) |
  Cardiology | 21 (42.9%) |
  Endocrinology | 20 (40.8%) |
  Other specialist | 45 (91.8%) |
 Medical technology needs | |
  Feeding tube | 40 (81.6%) |
  Oxygen | 17 (34.7%) |
  Tracheostomy | 11 (22.4%) |
  VP shunt | 10 (20.4%) |
  Ventilator | 5 (10.2%) |
  BiPAP | 4 (8.2%) |
  Central line | 3 (6.1%) |
  CPAP | 2 (4.1%) |
  Other | 18 (36.7%) |
Parent/caregiver and household characteristics | |
 Caregiver relationship to child | |
  Parent or step-parent | 47 (95.9%) |
  Grandparent | 2 (4.1%) |
 Caregiver age (years), mean (SD) | 37.7 (10.7) |
 Caregiver gender | |
  Male | 1 (2%) |
  Female | 48 (98%) |
 Caregiver education | |
  Less than high school degree | 10 (20.4%) |
  High school degree | 13 (26.5%) |
  Some college or higher | 26 (53.1%) |
 Caregiver employment status | |
  Employed full time | 10 (20.4%) |
  Employed part time | 5 (10.2%) |
  Homemaker | 17 (34.7%) |
  Retired | 3 (6.1%) |
  Unemployed | 9 (18.4%) |
  Other | 5 (10.2%) |
 Household annual incomea (n = 32) | |
  Less than $20,000 per year | 9 (28.1%) |
  $20,001–$40,000 per year | 9 (28.1%) |
  $40,001–$60,000 per year | 7 (21.9%) |
  $60,001–$80,000 per year | 4 (12.5%) |
  More than $80,000 pe year | 3 (9.4%) |
 Number of household members, mean (SD) | 4.0 (1.4) |
 Household crowding index, median (Q1, Q3) | 1.3 (1.0, 1.7) |
 Home community rural/urban statusb | |
  Urban focused | 34 (69.4%) |
  Large/small/isolated small rural city/town focused | 10 (30.6%) |