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Table 3 Social needs reported by CMC caregivers and program follow-up responses to those needs

From: Feasibility of implementing systematic social needs assessment for children with medical complexity

Variable

Overall

N

49

Any unmet social needs

 No

12 (24.5%)

 Yes

37 (75.5%)

Categories of unmet social need

 Gaps in access to food and/or nutrition benefits

20 (40.8%)

  Food insecurity, including formula

17 (34.7%)

  Gap in federal nutritional benefits

8 (16.3%)

 Housing-related concerns

9 (18.4%)

  Housing insecurity

3 (6.1%)

  Housing environmental safety concerns

6 (12.2%)

 Gap in home utility services

4 (8.2%)

 Lack of medical transportation

6 (12.2%)

 Concerns about school servicesa (n = 35)

8 (22.9%)

 Gap in supplemental security income benefitsb (n = 11)

8 (72.7%)

 Gap in home and community-based services program waiverc (n = 10)

8 (80%)

 Interpersonal safety concerns

1 (2%)

 Any caregiver needs

14 (28.6%)

  High caregiver burden

9 (18.4%)

  Caregiver social isolation

7 (14.3%)

Urgent social needs reported

5 (10.2%)

Asked for any help with unmet social needs

18 (36.7%)

Follow-up response by complex care programs to address social needsd

N

37

Provided information, referrals, or direct assistance

20 (54.1%)

 Provided information to patient/family

15 (40.5%)

 Referral made to community-based partner/agency

11 (29.7%)

 Direct assistance to patient/family

11 (29.7%)

  1. Sample size varies if item was only asked of a subset of participants
  2. aAmong children with an IEP (individualized education program) or 504 plan
  3. bAmong those waiting to hear back about an SSI (supplemental security income) application or if application was recently denied
  4. cAmong those waiting to hear back about CAP/C (Community Alternatives Program for Children is the Medicaid Home and Community-Bsaed Services waiver program in North Carolina) application or if application was recently denied
  5. dAmong those with at least one unmet social need