Table 1 Participant groups, definitions, and examples (not exhaustive)

Family members

Adult family members or caregivers of a child (any age) who have partnered in research or healthcare quality/improvement projects, through individual project level involvement or group involvement such as through a committee, council, or board. Family members who have partnership experience are eligible to complete the “Standard SNA Survey”. Families who have not participated in research or healthcare quality/improvement project partnerships are eligible to complete the anonymous “Family Survey”.

Health care providers

Members of the health care team who provide assessment, consultation, or treatment for children with development or rehabilitation needs. Some examples of healthcare providers are dietitians, Medicine People, nurses, physicians, psychologists, therapists (e.g., physical therapists, occupational therapists, recreation therapists, speech language pathologists), social workers, and traditional healers.

Knowledge translation (KT) support personnel

Elders, implementation specialists, knowledge brokers, Knowledge Keepers, librarians, nurse educators, research coordinators, and others whose formal role includes helping move health-related evidence into action. They may work or volunteer in health care, research, or community organizations.

Researchers

People who design and conduct research as part of their formal role. Researchers can work within universities, research institutes, health organizations, government, or community organizations.