Table 2 Data collection strategies
Strategy | Description | Frequency | Type of data | Use (aim) |
|---|---|---|---|---|
Data dashboard | • Recruitment messages sent • Declined • Non-response • Expressed interest • Enrolled • Samples collected • Re-collection needed • Results sent to Helix • Demographics (age, sex, race, ethnicity, education, income, area of residence) | Ongoing | Quantitative | Aim 1 |
Participant interviews | Semi-structured interview guide to qualitatively assess the experience of individuals who are part of In Our DNA SC | Every 6-months throughout the duration of the program | Qualitative | Aim 1 |
Use of training materials | • View pre-recorded training materials • Download brochures and handouts | During the training period for sites (pre-implementation) | Quantitative | Aim 2 |
Use of community-facing educational materials | Review of the utility of community-facing educational materials | Every 6-months throughout the duration of the program | Quantitative | Aim 2 |
Implementation site logs | Tracking of technical assistance calls with implementation sites; coded with CFIR to track facilitators and barriers | Weekly meetings | Quantitative (open-ended questions) | Aim 1, 2 |
Site readiness survey | Assessment of readiness for implementation and perceptions of the program using AIM, IAM, and FIM | Pre-implementation | Quantitative (open-ended questions) | Aim 1, 2 |
Work group logs | Tracking of working group meetings and progress; coded using CFIR to track facilitators and barriers | Weekly meetings | Quantitative (open-ended questions) | Aim 3 |
Adaptation logs | Tracking of changes made throughout the course of implementation and outcomes associated with change | Ongoing/as adaptations are made | Quantitative (open-ended questions) | Aim 4 |
Research coordinator logs | Tracking of questions and technical assistance needs from patients, clinicians, providers, implementation teams | Ongoing | Quantitative | Aim 1, 2 |
Check-in surveys | Periodic surveys sent to work group members to capture the experience and provide barriers and facilitators using RE-AIM framework | Pre-launch of a new phase of the program | Quantitative (open-ended questions) | Aim 3 |