When is engagement planned?a | Number (% out of N = 103) |
 In theory development | 6 (6) |
 In intervention design | 32 (31) |
 In implementation strategy design | 54 (52) |
 In formative research | 63 (61) |
 In evaluation and measurement | 34 (33) |
 Only stated but not explained in depth | 5 (5) |
 Other | 6 (6) |
 Not at all | 13 (13) |
Who will be engaged?a | Number (% out of n = 90) |
 Direct service providers or practitioners | 69 (77) |
 Partner organizations | 29 (32) |
 Patient/survivors or their families | 49 (54) |
 Policymakers | 16 (18) |
 Product makers/intervention designers | 3 (3) |
 Program/system administrators | 33 (37) |
 Public/General community members | 19 (21) |
 Purchasers or payers | 6 (7) |
 Other | 6 (7) |
Highest level of engagement in study | |
 Outreach and education | 4 (4) |
 Consultation | 50 (56) |
 Cooperation | 21 (23) |
 Collaboration | 12 (13) |
 Partnership | 3 (3) |
Engagement approach | |
 Practice-based research | 22 (23) |
 Community-based participatory research (CBPR) | 14 (16) |
 Community engaged research (CEnR) | 10 (11) |
 Other | 13 (14) |
 Not specified | 31 (33) |
Engagement strategiesa | |
 Brainstorming/crowdsourcing ideas | 4 (4) |
 Capacity-building | 20 (22) |
 Human-centered design | 10 (11) |
 Information dissemination | 15 (17) |
 Key Informant data collection in needs assessment, formative research, or research agenda setting | 69 (77) |
 Group meetings for consensus building or prioritization | 20 (22) |
 Process, system, intervention, or implementation mapping | 8 (9) |
 Project steering committee, advisory group or other decision-making body | 35 (39) |
 Partners as active members of research team | 15 (17) |
Others | 3 (3) |
Indicators of equity in engagementa | |
 Decision-making | 14 (16) |
 Influence | 25 (28) |
 Mutual benefit | 23 (26) |
 Ownership | 0 (0) |
 Power and control | 1 (1) |
 Resource-sharing | 13 (14) |
 Responsibility | 2 (2) |
 Not described | 43 (48) |
Is engagement measured? yes | 14 (16) |