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Table 2 Focus group themes

From: Leveraging human-centered design and causal pathway diagramming toward enhanced specification and development of innovative implementation strategies: a case example of an outreach tool to address racial inequities in breast cancer screening

Domain

Theme(s)

Representative quotes

Motivation to screen

- Need to overcome competing priorities

“I’m trying to feed my baby. I’m trying to get my kids clothes."(Participant, Focus Group 2)

Reactions to media

- Positive reactions to videos

“It's like, "Oh, that looks like me. Oh, that looks like somebody I can relate to."(Participant, Focus Group 1)

- Familiarity—liked seeing people who looked like them in image of a woman getting a mammogram

“it's going to be important that whoever is involved in this not only looks the same skin color and ethnicity but age-wise, too, so that makes them more relatable, like someone who has actually had a mammogram themselves or who is old enough that needs one, I think would be important too.” (Participant, Focus Group 2)

Reactions to content

- Appreciated discussion of cost

 

- Thought that question asking what prevented you from making your appointment sounded judgmental

Perception of chatbot

- Some skepticism in multiple groups regarding chatbot persona

“My first impression would be does she really know what she's talking about? Because just from the picture, I don't know. Yeah, that's what I think.” (Participant, Focus Group 3)

“We don't just want her to just be a random name on the paper. She needs to represent what she's trying to teach us.” (Participant, Focus Group 2)

Comfortability

- Majority of participants thought they would feel comfortable using chatbot although some skepticism about using artificial intelligence

“got a problem with that whole Big Brother thing.” (Participant, Focus Group 3)

Trust

- Expressed privacy concerns about chatbot

Usefulness

- Saw chatbot as particularly useful for younger women/ first time screening

“I'd just like to see more of our daughters and our daughter's friends, just to come together as a group and just have the knowledge, just so we get to tap in on that. You know, we know that they may not know, and their friends may not know. So just kind of, give more of an outlook on everything for them as well.” (Participant, Focus Group 1)

Relatability

- Concern about cultural inclusiveness—felt that it wasn’t personalized outside of community partner involvement

“And it just didn't speak to me as being a Black woman. That's what I'm going to say. But, you know, let's just be honest. Who made the app?” (Participant, Focus Group 2)

Desired content

- More information about self-exams

“I would like to have all of it, even the statistics because for me, I would want to go and encourage someone else to get a mammogram. And sometimes, not a lot of statistics, but just knowing among African Americans, that statistics, because a lot of us don't get mammograms because we've heard about the negative things instead of the positive things. So, yeah, I would want to know all of it.” (Participant, Focus Group 3)

- More breast cancer data about Black women specifically

- More information about how to prepare for mammogram

“I used to believe that certain diseases were only for white people.” (Participant, Focus Group 2)

“We got to come to the future, and feel comfortable in talking about our health, our breasts, all types of cancer. So some kind of way in there, explain the reason why women of color are disproportionate in this fight for cancer. Knowledge, communication, openness.” (Participant, Focus Group 1)

Desired features/ functions

- Appointment reminders

 

- Include ways to make breast cancer screening social, e.g., “mammogram parties”

Usability

- Should be efficient—able to schedule quicker than a phone call

“And I can go right here and get it all done and be finished in 15, 20 min as opposed to being on the phone a half hour… I would definitely use it” (Participant, Focus Group 3)

- Did not want to download an app to use